The unification of hematopoietic stem cell transplantation registry in Japan and establishment of the TRUMP system

Yoshiko Atsuta, Ritsuro Suzuki, Ayami Yoshimi, Hisashi Gondo, Junji Tanaka, Akira Hiraoka, Koji Kato, Ken Tabuchi, Masahiro Tsuchida, Yasuo Morishima, Makoto Mitamura, Keisei Kawa, Shunichi Kato, Tokiko Nagamura, Minoko Takanashi, Yoshihisa Kodera

Research output: Contribution to journalArticlepeer-review

Abstract

There are four registries of hematopoietic cell transplant in Japan; the Japan Society for Hematopoietic Cell Transplantation (JSHCT), Japanese Society of Pediatric Hematology, Japan Marrow Donor Program and Japan Cord Blood Bank Network, each playing an important role in society by reporting the number and outcomes of transplantations and contributing new findings obtained from studies on individual topics. However, there have been a number of difficulties with analyzing data in overlapping registries and multiple databases at centers affiliated with each of the four registry organizations. JSHCT was pivotal in orchestrating the computerization and unification of hematopoietic stem cell transplant registries for the purpose of resolving these issues and providing a more accurate awareness of hematopoietic stem cell transplantations performed in Japan. JSHCT played a central role in developing the "Transplant Registry Unified Management Program (TRUMP)" to enable transplant institutes to manage patient information with emphasis on convenience to institutes, safety of patient information, and quality of data management. While enhancing domestic registries, the program seeks to coordinate with other hematopoietic cell transplant registries around the world to contribute to the development of registries throughout Asia.

Original languageEnglish
Pages (from-to)1462-1469
Number of pages8
Journal[Rinshō ketsueki] The Japanese journal of clinical hematology
Volume48
Issue number11
Publication statusPublished - Nov 2007
Externally publishedYes

All Science Journal Classification (ASJC) codes

  • Medicine(all)

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